Gluten Related Disorders: TrulyGlutenFree

Our knowledge of gluten illness – now officially termed ‘gluten-related disorders’ – has come an awful long way in the past few years. We now know that gluten illness is a spectrum of disorders rather than all about coeliac disease. You can have 4 main types:

Gluten Classical IgE Allergy (rare but does occur)

Gluten Malabsorption (lack of enzymes to break it down, although I don’t think that occurs without a larger gluten problem personally; it’s a clue).

Coeliac Disease (the autoimmune attack on the villi in the gut) and..

Non-Coeliac Gluten Sensitivity (every bit as serious as Coeliac Disease, an inflammatory and sometimes autoimmune attack anywhere in the body).

This makes testing for gluten related disorders somewhat complex. In essence, mainstream medicine is very slow at changing and 99% of health professionals still think about and look only for coeliac disease markers. To get an official diagnosis on your health records, it is likely that you need to go through the mainstream coeliac testing process so it’s best to start with that.

However, the vast majority of gluten-sensitives do not have coeliac disease, and even 50% of coeliac disease sufferers do not have the traditionally-accepted markers. That’s why the rate of diagnosis for coeliac disease is so woefully low, and much, much worse for the newly-recognised Non-Coeliac Gluten Sensitivity since most people have never heard of it.

Given a negative coeliac result, most people are told they don’t have a problem with gluten and off they go, completely unaware that the problem is with the testing, not them. They merrily continue to eat a food which, inside, is causing inflammatory and auto-immune attacks.

Coeliacs are not healing on the traditional gluten free diet

It is, in fact, well known that the vast majority of coeliacs do not heal their villi - and therefore continue to suffer the consequences of long-term malabsorption. Most 'experts' say it is because they must be still eating gluten. Whilst that may be so in some cases, there are simply too many with continued illness and symptoms for that always to be so. My view is that they are probably reacting to other types of grain gluten (or indeed other fractions of the food) or to known gluten-cross-reactive foods. And most aren't even aware of that issue, let alone their doctors.

NCGS can be more severe

The other issue is that there are far more people suffering with the other forms of gluten related disorder, especially NCGS (non-coeliac gluten sensitivity) and, in fact, NCGS can be every bit as severe as coeliac disease and worse in many cases. NCGSs are known to be more sensitive to gluten, to react more strongly to it and to react to much smaller amounts. They also tend to be more reactive to other grains, not just the gliadin involved in coeliac disease, but especially the ubiquitous corn which literally turns up in everything.

NCGSs have a different gene profile to coeliacs quite often and are not even being looked for. This is a big mistake because we know now that NCGS pathology involves two main pathways: inflammation in the body and autoimmunity, both of which stem initially from the damage done by a gluten-zonulin process to the body barriers, causing leaky gut, blood-brain barrier, lungs, skin etc. The most common NCGS issues are neurological, especially chronic headaches, migraine, mood disorders, brain fog and movement disorders eg. ataxia, restless legs etc. Not a coeliac picture that, is it?!

I could witter on for hours for you on this subject as I have researched it now for the past 4 years extensively. I am an NCGS sufferer myself and wrote the Barrier Plan to help other sufferers almost 6 years ago now. This has now become the Gluten Plan you will find below.

If you still wish to read up a bit more on this whole subject of gluten related disorders, go and visit my special site on it at TrulyGlutenFree. Loads more info and help there for you.

Gluten Testing

 

There is a really detailed section on testing for gluten related disorders in the Gluten Plan below.

 

To start you off, though, you can see the 'simplified' version here on the Gluten Tests section.

 

The Gluten Plan

 

This 280 318 page book offers you a detailed, fully-researched, product-specific 3 step programme for any gluten related disorder. 


As a purchaser, you are eligible to join a special, private Facebook Group to chat with me and others in the same boat. I will post any significant updates there for you too and you can always download the most recent PDF version there. 

The ebook version is a PDF which you can read on screen or using most e-readers like Kindle, Nook etc. PDF form is the most popular because it makes it easier to follow all the links to tests, products and resources. Here's how to get your PDF onto your Kindle.

If you prefer, I've made an A4 size paperback. It looks huge, but I made it this size as a lot of people buying the paperback either had vision problems and needed non-screen, or they wanted to make notes in it. You can purchase the Print on Demand version here. Note there are a lot of links in the ebook, which obviously you won't be able to follow in the printed version BUT you can join the Facebook group as above and access the most up to date digital version for links.

 

 

 

Note: I recommend this book all the time for non-gluten people too. Why? I haven't yet had a chance to pull out all of the different sections and protocols for eg leaky gut, lowering inflammation, reversing autoimmunity etc, but they are all there and are useful to many different conditons and circumstances.

 

 

There are three main steps to consider in GRDs (gluten related disorders) and each is covered for you. This plan is based around the three steps:

 

 

1. Finding Your Type of Gluten Related Disorder (so you know what to do).

 

2. Determining Your Diet (because a gluten free diet is not enough for most people to heal).

 

3. Establishing Your Healing Protocol (what damage and processes are going on so you can target treatment properly?)


In the book, this is then followed by extensive research into each of the three steps, loads of links to resources and product-specific protocols for areas such as:
 

  • Inflammation
  • Healing
  • Autoimmunity
  • Barrier Hyper-permeability and Leaky Gut
  • Methylation
  • Malabsorption
  • Nitric Oxide Cycles
  • Nutrient Deficiency

 

and loads more.

 

We finish with a really important What's Blocking You? section to round-up all the most commonly-found factors that stop people healing, not just from gluten damage but any chronic illness.

 

 

Preview

 

Do you think it might help? I've put a 38 page Preview here for you, so have a read.

 

Hope it truly helps you; it took me about two years to research and write!

Reviews

"Blimey.  Your Gluten Plan is absolutely bloody brilliant!!   Can’t tell you how many light bulbs have gone off whilst reading it.  Having this information all in one place has given me a lovely feeling of peace and security; that actually yes I will get to the bottom of everything and achieve a level of wellbeing where my physical, psychological and emotional health learn to connect in a positive way.  Yay to epigenetics! 

 

The information in the Gluten Plan ties everything together so well and it’s great having links to further information, products and tests – it makes it a lot easier to access information quickly. 

 

It’s a perfect package and will appeal to people who need only light guidance right through to those who have lots of health issues and have to delve tissue-deep into their symptoms (that’ll be moi then!).  Don’t be nervous about releasing your baby into the big wide world coz he’s beautiful!!! PW April 14

 

Have finished reading it today and totally amazed at the wonder of you, I do so hope you get the recognition you deserve because you truly deserve it infinity percent!

 

I love your writing style Micki and think you have achieved a great 'easy to read' guide full of stacks of information, you have got the balance right to appeal to 'beginners' in the field and also to those further ahead. I love the quotes and inserts and the way you give people choices depending on their circumstances.  I also like the references to more reading (only if you want to because it's not important you do that after reading yours) and the recipe book links etc.  I can honestly say this is a very 'simplified' reference book giving very complex information...brilliant and thank you for doing it for us! KC May 14

 

 

I really think this book and plan are the result of not only your expertise, but of your generosity too! You have rendered a subject that is unfathomable at times, very accessible to anyone wanting to take their health into their own hands and avoid future illness. You've collated enormous amounts of cutting edge info and neatly and concisely (as far as is possible!) made it easy to understand and follow. Instead of just telling us what to do, you are teaching us! And on a very human level.

 

I'd say that you need to point out that it is more than just a plan, but a book with a LOT of bang-up-to-date information in it! Because you really have poured all your research into this. I was quite gobsmacked as to the depth of info you have gone into and the information you have researched, collated and clearly set-out - and THEN 'given' in this plan! What you have done is major. Be in no doubt.


As someone who has trusted in you and bought a plan off you, a stranger, on the internet- in all honesty!- you're weighing up the money to risk-factor - and I don't know that I'd have paid much more than £65! [The Barrier Plan previous price]. That sounds AWFUL! I NOW realise it's worth and must say that I'd probably pay more knowing that from the beginning... but how can potential clients know how GREAT you are?! You need to attract a clientele who is aware of your worth, is what I am saying!" I took her at her word and posted her whole advice comment! BB May 14

 

I am pleased to say that I have received more reviews anc omments on the Gluten Plan since these, and I have put them on their own special page for you to peruse here: Gluten Plan Reviews.

"So this TrulyGlutenFree life style was validated by an all healthy colon!!! Yippy no diverticulitis, no polyps all ok.. Thank you MIcki for your research & wisdom!!! Milestone of recovery, 28 months on your TGF programme." BA May 14

 

As a purchaser, you are eligible to join a special, private Facebook Group to chat with me and others in the same boat. I will post any significant updates there for you too. The link to this is included in your download.

 

There is a general TrulyGlutenFree Facebook group, too.

 

Also, sign up to the TrulyGlutenFree blog where I post any other info on the subject! There are currently almost 700 posts you can easily search and over 2000 comments. If you are thinking about it, I have probably written about it sometime in the past few years!

 

Ok, happy? Go and read the Preview here, or get the book here.

 

Contact me with any questions if you need to. Otherwise, I really hope you enjoy reading it as much as I did researching and writing it for you! And I truly hope it helps you find a path back to a vibrant, energetic, symptom-free you.

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